received a framed print of his or her com-
pleted portrait.

Lytle, of Pennington, N.J., spoke about
his daughter and the project. At 6 months
old, Avery was diagnosed with Crouzon
syndrome, which causes plates in the skull
to fuse prematurely and also affects growth
of bones in the mid-face. This results in a
sunken mid-face and bulky eyes.

Avery has undergone 20 operations, in-
cluding a few as an infant, one that removed
the back of the skull and several to move
the mid-face forward.

“Those surgeries made a big difference
for my daughter,” he said.

Lytle said when he and Molly heard about
this project, they knew it was perfect for her.

“We thought that it would be a great idea
because the doctors are wonderful,” Lytle
said. “I think the portrait project was really
motivated by the way the doctors began treating the emotional scars.”
While Avery was a bit nervous at first, once she got comfortable
with Frey, her mind was at ease, he said. Avery and the other kids
aren’t popular in school and are often bullied, but for once, are being
shown special attention.

“[Frey] really made this effort to include Avery in the project,”
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Lytle said. “These kids really become an integral part of the process.

“They are really doing God’s work in trying to address the psychological
impact that this condition has on the children,” he added. “I wish there
was more funding for it. Our family has been lucky to be a part of it.” l
Contact: jcohen@jewishexponent.com; 215-832-0747
Name: Foodarama Caterers
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Depth: 4.75"
Color: Black plus one
Comment: JE - Simchas
Ad Number: 00066175
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TOVA GILEAD, INC.

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WWW.FOODARAMA.COM MARCH 31, 2016
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