"If you know that you’re a high-risk
couple — you’re both carriers for
Tay-Sachs — prior to a pregnancy,
you have more options available
for family planning.”
KAREN GRINZAID
parents worry. Wernick and Davies are
among those worried.

“I had to have conversations with my
fertility clinic about the criminaliza-
tion of in vitro fertilization and what
happens aft er we are done building
our family,” Wernick said. “If we have
embryos remaining, will I be tried,
prosecuted? Will my fertility clinic be
tried, prosecuted for any embryos that
remain, including the embryos that are
homozygous for Tay-Sachs?”
Grinzaid said that JScreen is not an
advocacy organization and that they
always defer to a parent’s health care
provider to give guidance on family
planning, including on whether a cou-
ple should pursue IVF. She believes that
IVF is not yet at risk of being banned.

Still, Davies and Wernick believe
the story of their family-building, as
well as others experiencing pregnancy
complications, such as deadly ectopic
pregnancies, needs to be included in
the greater conversation about repro-
ductive rights.

“We need to have solidarity, every-
one, on these issues, on the importance
of this, because this is about freedom,”
Davies said. “And it’s about every fam-
ily getting to write their own story
and fi gure out what works best for
them and what keeps them healthy and
happy and safe.” JE
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